Tag Archives: May Awareness Month
The EDS UK road trip begins!
Monday 31st March 2014 Today is the first day of our local area meetings in Bournemouth. Before I left I worked in the office until 3pm as we have so much to organise and plan for our upcoming events and campaigns. We … Continue reading
Show your support for Rare Disease Day this week!
Monday 24th February I spent yesterday at two families houses filming in Surrey for our documentary, so I am feeling tired today. But that was officially our last day of filming! Fingers crossed it will be fully edited in the … Continue reading
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Tagged EDS UK, Ehlers-Danlos Syndrome, May Awareness Month, rare disease day
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