Have I not even been back a week yet? It feels like a month!
I had the most wonderful, much needed break and switched off for the first time in ages. I had 4 days of work whilst I was in America when I attended the EDNF 2014 Conference. It was such a successful few days. I was very honoured to have been invited to their board meeting and medical professional meeting and it was wonderful to be sharing ideas and visions on an International level.
I met with many medical professionals and heard some fantastic talks. I ran my own talk with the kids and teens again as I did last year and I screened our documentary “Issues with my Tissues” on the Friday afternoon to a packed room. It went down really well and it was great to see it again. I have so many exciting things to tell you all following my trip, lots of surprises and announcements, and as soon as I can I will share with you all! Watch this space.
We are selling tickets for our residential conference fast! If you haven’t managed to book your tickets yet we recommend that you book ASAP to avoid disappointment. We have the most incredible list of speakers, from all over the World. Make sure you are there to get the latest updates and information from all the leading specialists in EDS and more importantly to be surrounded by people just like you. Remember we also have a grant from genes for jeans that is allowing us to provide your kids and teens with an amazing few days of entertainment so you can relax and listen to the talks.
I hope you have all been enjoying the lovely weather, but keeping hydrated with salt handy at all times, this heat is no friend of POTS.
Have a great weekend everyone.
Chief Operations Officer